Hello again. Is anyone here, sick and tired of hearing about Brexit? I certainly am. When we went to the polls in June 2016, we never realized what a fiasco it would become.
But yes, I voted to leave the EU. I had reasons for doing this. Basically, we were fed a load of eyewash by the leave campaigners. Mainly Boris Johnson. Promising that money which was paid to Europe, would be paid in to the NHS. I also hoped that there would be money for social care, and to right the injustice which has been done to the disabled.
When David Cameron and Nick Clegg came into power, they decided to overhaul the benefits system. A good idea, it seemed, because there were a lot of people claiming benefits, that should not have been. they would claim to have bad backs, but would be seen out dancing. One man even went on television, as a dancer, but he was on sickness benefit, so some overhauling needed to be done.
But what happened, went to the other extreme. people genuinely unable to work, have been kicked off benefits, myself included, and expected to find work.
I’m going to digress here to tell you about something that happened recently. I like to write stories. It can take me a while to do it, but it gives me something to think about. I had written an updated version of Cinderella, which I use for my storytelling, but was persuaded to enter a competition, by the writing group I attend fortnightly. I was reluctant to enter, as I don’t find computer skills easy. You will notice that this is just a basic blog. It was hard for me to figure out how to use this WordPress site. I am positively phobic about trying new things on a computer.
My excellent neurologist said, in his report about my condition, Tuberous Sclerosis Complex Syndrome, that, he believes, in my case, that it is hard for me to process information. I have to say, I agree with him. This would also explain my face-blindness (prosopagnosia) which is, for me, the inability to retain and process the memory of a face, which is why a facial image is never stored in my brain.
similarly, certain physical tasks are like mountains to climb for me. They are also difficult to retain in my memory. Computer skills are a case in point. I knew, if I entered the competition, I would have to present the manuscript, double spaced, numbered, Times New Roman font. I hadn’t got a clue about any of this. But a friend of mine promised to show me what to do. Unfortunately, she became ill and couldn’t help me.
So there I was. I had to look up instructions for double-spacing a manuscript. Then look up numbering. I wrote everything down because I would not have been able to remember it all. I did the tasks, but my head was splitting and I felt really dizzy. I had to sit down with painkillers, before I could even think of sending the story off. Now, if you asked me what I did, I couldn’t tell you. I would have to refer to my written notes and even then, the journey from my brain, to my eyes, hands and fingers, is sluggish at best.
Yes, I am typing this blog, but I don’t attempt to change the layout, font, or anything else. It has taken me a long time to learn how to set an image, or post a link. I am also, not a quick typist. I could never keep up in an office. My Chronic Fatigue symptoms, added to all of this, mean that I would never have the stamina for professional work. For the same reasons I have explained above, I could never use a till in a shop. I have tried, and I even forgot which coins were which, I was so confused and dizzy after working for one hour in a charity shop.
So, to get back to the original subject. I was refused benefits, even though I explained in detail, to the medical assessors, what my problems were and even though my doctors backed me up. So the welfare reforms, rather than targeting people who do not want to work, are, instead, targeting those who cannot. It is worse for those of us with invisible conditions. I can suddenly forget how to use the microwave, the vacuum cleaner, or the TV, even though I have used them for years. It’s going to seem terrible, I know, but I have often wished that I was in a wheelchair, with an illness that could be seen and taken seriously. I sometimes hate the fact that I look perfectly well, but have a brain which won’t co-operate with me, and because that can’t be seen, I am dismissed as able to do a job, which I cannot do.
When I voted leave, I mistakenly thought that some of the money saved would help people with invisible, but still chronic disabilities, to get the help they needed, but of course, that is not going to be the case. Now the country is in a mess. However, not every change in the country should be blamed on Brexit. High Street shops are closing because of a change in consumer spending. Not because we are leaving Europe. The only thing we can really do now, is try not to panic. If there was another referendum, I would vote to stay, now that I’ve seen what a mess the government have made of Brexit, but since we are probably still going to go, we should just make the best of it, and look to trade with other countries, not in Europe.
I’d like to end on a high note. Last month at thesuccessstoriesclub.wordpress.com See, I don’t know how to do a link to it, but the address is there if you want to look at the site, I won the audience vote for my storytelling and got another trophy.
That’s all for now. I will post again soon.